Babait ‘i aft\u00eb dhe i sh\u00ebndetsh\u00ebm’, 35 vje\u00e7, i jepen papritmas gjasht\u00eb muaj jet\u00eb pasi u kap nga ‘s\u00ebmundja brutale pa sh\u00ebrim’ <\/p>\n
\u2022 Babai i aft\u00eb i diagnostikuar me s\u00ebmundje t\u00eb pash\u00ebrueshme t\u00eb neuroneve motorike <\/p>\n
\u2022 Ronald Hobden, 35 vje\u00e7, i jan\u00eb dh\u00ebn\u00eb gjasht\u00eb muaj jet\u00eb <\/p>\n
Turisti kishte frik\u00eb se do t\u00eb kishte nj\u00eb s\u00ebmundje pas kafshimit t\u00eb lakuriqit t\u00eb nat\u00ebs Nj\u00eb babai i dy f\u00ebmij\u00ebve n\u00eb form\u00eb dhe i sh\u00ebndetsh\u00ebm i \u00ebsht\u00eb dh\u00ebn\u00eb vet\u00ebm gjasht\u00eb muaj jet\u00eb pasi zhvilloi nj\u00eb s\u00ebmundje mizore pa sh\u00ebrim. Ronald ‘Hobbo’ Hobden, 35 vje\u00e7, ishte nj\u00eb jav\u00eb jasht\u00eb n\u00eb vrapim t\u00eb nj\u00eb maratone kur u diagnostikua me skleroz\u00eb amiotrofike laterale me fillim bulbar (MND-BALS) n\u00eb qershor. <\/p>\n
Babai nga Bregut i Art\u00eb po p\u00ebrballet tani me realitetin e zymt\u00eb se do t’i duhet t\u00eb l\u00ebr\u00eb pas gruan e tij Anna-Louise dhe dy f\u00ebmij\u00ebt e tyre, Lizzie, tre vje\u00e7 dhe Henry, nj\u00eb. Hobden kishte p\u00ebrjetuar simptoma t\u00eb gjendjes n\u00eb muajt para diagnoz\u00ebs s\u00eb tij.<\/p>\n
Trupi i tij po p\u00ebrkeq\u00ebsohet, me humbjen e forc\u00ebs, l\u00ebvizjes dhe ekuilibrit. Ai gjithashtu tani lufton p\u00ebr t\u00eb mbajtur f\u00ebmij\u00ebt e tij. Skleroza laterale amiotrofike me fillimin bulbar\u00a0prek neuronet motorike brenda rajonit bulbar t\u00eb trungut t\u00eb trurit duke rezultuar n\u00eb v\u00ebshtir\u00ebsi n\u00eb frym\u00ebmarrje, t\u00eb folur, g\u00eblltitje dhe l\u00ebvizje. \u00cbsht\u00eb forma m\u00eb agresive e s\u00ebmundjes s\u00eb neuroneve motorike dhe ka nj\u00eb jet\u00ebgjat\u00ebsi prej gjasht\u00eb muajsh deri n\u00eb tre vjet. Zoti Hobden pritet t\u00eb humbas\u00eb p\u00ebrfundimisht funksionin e gjymtyr\u00ebve t\u00eb tij para se t\u00eb paralizohet plot\u00ebsisht. M\u00eb pas ai do t\u00eb duhet t\u00eb ushqehet\u00a0n\u00ebp\u00ebrmjet nj\u00eb tubi gastrostomie endoskopike perkutane (PEG) q\u00eb do t\u00eb k\u00ebrkoj\u00eb kujdes me koh\u00eb t\u00eb plot\u00eb. S\u00ebmundja nuk do t\u00eb ndikoj\u00eb n\u00eb shqisat e tjera t\u00eb babait, q\u00eb do t\u00eb thot\u00eb se ai do t\u00eb jet\u00eb i vet\u00ebdijsh\u00ebm p\u00ebr at\u00eb q\u00eb po ndodh nd\u00ebrsa trupi i tij p\u00ebrkeq\u00ebsohet. Gruaja e tij zem\u00ebrthyer ka p\u00ebrshkruar se si gjendja e t\u00eb shoqit e ka kthyer p\u00ebrmbys jet\u00ebn e tij dhe t\u00eb familjes s\u00eb tij. “\u00cbsht\u00eb gj\u00ebja m\u00eb e v\u00ebshtir\u00eb p\u00ebr t’u par\u00eb,” tha ajo p\u00ebr 7News. “Tani po shikojm\u00eb n\u00eb \u00e7do k\u00ebnd t\u00eb mundsh\u00ebm p\u00ebr t’ia zgjatur jet\u00ebn sa m\u00eb gjat\u00eb q\u00eb t\u00eb jet\u00eb e mundur.” “Ne po p\u00ebrpiqemi t\u00eb jemi sa m\u00eb praktik\u00eb dhe t\u00eb p\u00ebrgatitur p\u00ebr f\u00ebmij\u00ebt tan\u00eb.”<\/p>\n
Nj\u00eb faqe GoFundMe \u00ebsht\u00eb krijuar nga shoqja e familjes Leah Hill p\u00ebr t\u00eb ndihmuar Hobdens. “Krijimi i kujtimeve p\u00ebr Lizzie dhe Henry si nj\u00eb familje s\u00eb bashku, duke p\u00ebrfshir\u00eb udh\u00ebtimet, nd\u00ebrsa ata munden dhe nd\u00ebrsa Hobbo \u00ebsht\u00eb n\u00eb gjendje,” shkroi ajo. Q\u00ebllimi tjet\u00ebr ishte t’i siguronte babait t\u00eb dashur ‘qasjen n\u00eb kujdesin m\u00eb t\u00eb mir\u00eb sh\u00ebndet\u00ebsor’ dhe t\u00eb ndihmonte n\u00eb mbulimin e shpenzimeve t\u00eb tij t\u00eb tepruara mjek\u00ebsore.<\/p>\n
Zonja Hill iu referua nj\u00eb ila\u00e7i eksperimental q\u00eb po testohej n\u00eb Japoni, i rekomanduar nga specialisti i zotit Hobden n\u00eb Qendr\u00ebn e Mendjes s\u00eb Trurit. Familja d\u00ebshiron t\u00eb shkoj\u00eb n\u00eb Japoni\u00a0p\u00ebr t\u00eb pakt\u00ebn tre jav\u00eb p\u00ebr t\u00eb kontrolluar n\u00ebse zoti Hobden \u00ebsht\u00eb i p\u00ebrshtatsh\u00ebm p\u00ebr t\u00eb filluar trajtimin. Ila\u00e7i eksperimental do t’i kthej\u00eb ata rreth 5000 dollar\u00eb n\u00eb muaj dhe familja po k\u00ebrkon t\u00eb rikthej\u00eb nj\u00eb furnizim gjasht\u00eb mujor p\u00ebr zotin Hobden. P\u00ebr Anna-Louise, ajo po humbet dashurin\u00eb e jet\u00ebs dhe partnerin e saj t\u00eb p\u00ebrkushtuar t\u00eb jet\u00ebs. Ajo e adhuron Hobbo-n\u201d, tha zonja Hill. Ata n\u00eb thelb jan\u00eb rritur s\u00eb bashku, duke ndar\u00eb 16.5 vjet dashuri, lumturi dhe aventura. Mendimi i nj\u00ebrit prej tyre pa tjetrin na duket i paimagjinuesh\u00ebm t\u00eb gjith\u00ebve’. Faqja GoFundMe tashm\u00eb ka mbledhur m\u00eb shum\u00eb se 200,000 dollar\u00eb.
\nNga dailymail.co.uk<\/p>\n","protected":false},"excerpt":{"rendered":"
Babait ‘i aft\u00eb dhe i sh\u00ebndetsh\u00ebm’, 35 vje\u00e7, i jepen papritmas gjasht\u00eb muaj jet\u00eb pasi u kap nga ‘s\u00ebmundja brutale pa sh\u00ebrim’ \u2022 Babai i aft\u00eb i diagnostikuar me s\u00ebmundje t\u00eb pash\u00ebrueshme t\u00eb neuroneve motorike \u2022 Ronald Hobden, 35 vje\u00e7, i jan\u00eb dh\u00ebn\u00eb gjasht\u00eb muaj jet\u00eb Turisti kishte frik\u00eb se do t\u00eb kishte nj\u00eb s\u00ebmundje […]<\/p>\n","protected":false},"author":2,"featured_media":61720,"comment_status":"open","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"footnotes":""},"categories":[1],"tags":[],"class_list":{"0":"post-61719","1":"post","2":"type-post","3":"status-publish","4":"format-standard","5":"has-post-thumbnail","7":"category-te-tjera"},"_links":{"self":[{"href":"https:\/\/neutrale.al\/index.php\/wp-json\/wp\/v2\/posts\/61719","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/neutrale.al\/index.php\/wp-json\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/neutrale.al\/index.php\/wp-json\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/neutrale.al\/index.php\/wp-json\/wp\/v2\/users\/2"}],"replies":[{"embeddable":true,"href":"https:\/\/neutrale.al\/index.php\/wp-json\/wp\/v2\/comments?post=61719"}],"version-history":[{"count":1,"href":"https:\/\/neutrale.al\/index.php\/wp-json\/wp\/v2\/posts\/61719\/revisions"}],"predecessor-version":[{"id":61721,"href":"https:\/\/neutrale.al\/index.php\/wp-json\/wp\/v2\/posts\/61719\/revisions\/61721"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/neutrale.al\/index.php\/wp-json\/wp\/v2\/media\/61720"}],"wp:attachment":[{"href":"https:\/\/neutrale.al\/index.php\/wp-json\/wp\/v2\/media?parent=61719"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/neutrale.al\/index.php\/wp-json\/wp\/v2\/categories?post=61719"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/neutrale.al\/index.php\/wp-json\/wp\/v2\/tags?post=61719"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}